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Parental Estimation of Their Child's Increased Type 1 Diabetes Risk During the First 2 Years of Participation in an International Observational Study

Title: Parental Estimation of Their Child's Increased Type 1 Diabetes Risk During the First 2 Years of Participation in an International Observational Study: Results From the TEDDY study.
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Name(s): Swartling, Ulrica, author
Lynch, Kristian, author
Smith, Laura, author
Johnson, Suzanne Bennett, author
, author
Type of Resource: text
Genre: Journal Article
Text
Date Issued: 2016-04-01
Physical Form: computer
online resource
Extent: 1 online resource
Language(s): English
Abstract/Description: This study assessed mothers' and fathers' perception of their child's risk of getting type 1 diabetes (T1D) during the first 2 years of their participation in The Environmental Determinants of Diabetes in the Young (TEDDY) study. TEDDY parents were informed of their child's increased genetic risk for T1D at study inception. Parent perception of the child's risk was assessed at 3, 6, 15, and 27 months of age. In families with no history of T1D, underestimation of the child's T1D risk was common in mothers (>38%) and more so in fathers (>50%). The analyses indicated that parental education, country of residence, family history of T1D, household crowding, ethnic minority status, and beliefs that the child's T1D risk can be reduced were factors associated with parental risk perception accuracy. Even when given extensive information about their child's T1D risk, parents often fail to accurately grasp the information provided. This is particularly true for fathers, families from low socioeconomic backgrounds, and those with no family history of T1D. It is important to develop improved tools for risk communication tailored to individual family needs.
Identifier: FSU_pmch_27241873 (IID), 10.1177/1556264616648589 (DOI), PMC4917467 (PMCID), 27241873 (RID), 27241873 (EID), 1556264616648589 (PII)
Keywords: Children, Informed consent, Risk perception, Screening, Type 1 diabetes
Grant Number: U01 DK063821, UC4 DK063863, UL1 TR000064, U01 DK063836, U01 DK063829, U01 DK063865, UC4 DK095300, UC4 DK063861, UC4 DK063829, UC4 DK063821, UC4 DK063836, HHSN267200700014C, U01 DK063861, UL1 TR001427, UC4 DK063865, U01 DK063863, U01 DK063790, UC4 DK100238, UL1 TR001082
Publication Note: This NIH-funded author manuscript originally appeared in PubMed Central at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4917467.
Subject(s): Adult
Child, Preschool
Diabetes Mellitus, Type 1/genetics
Diabetes Mellitus, Type 1/prevention & control
Disclosure
Educational Status
Ethnic Groups
Family Characteristics
Fathers
Female
Genetic Predisposition to Disease
Health Knowledge, Attitudes, Practice
Humans
Infant
Male
Minority Groups
Mothers
Parents
Patient Education as Topic
Risk Assessment
Persistent Link to This Record: http://purl.flvc.org/fsu/fd/FSU_pmch_27241873
Owner Institution: FSU
Is Part Of: Journal of empirical research on human research ethics : JERHRE.
1556-2654
Issue: iss. 2, vol. 11

Choose the citation style.
Swartling, U., Lynch, K., Smith, L., & Johnson, S. B. (2016). Parental Estimation of Their Child's Increased Type 1 Diabetes Risk During the First 2 Years of Participation in an International Observational Study: Results From the TEDDY study. Journal Of Empirical Research On Human Research Ethics : Jerhre. Retrieved from http://purl.flvc.org/fsu/fd/FSU_pmch_27241873