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Parental disclosure of ASD diagnosis to the child

Title: Parental disclosure of ASD diagnosis to the child: A systematic review.
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Inaccessible until Feb 2, 2019 due to copyright restrictions.

Name(s): Smith, Isaac C., author
Edelstein, Jeffrey A., author
Cox, Bradley E., author
White, Susan W., author
Type of Resource: text
Genre: Text
Journal Article
Date Issued: 2018-02-02
Physical Form: computer
online resource
Extent: 1 online resource
Language(s): English
Abstract/Description: Despite increased rates of diagnosis of autism spectrum disorder (ASD) in recent years, literature examining when and how parents of newly-diagnosed youth disclose their diagnosis to them is scarce. Given the increasing number of newly-diagnosed individuals, an exploration of the effects of disclosure on children with ASD is warranted. We conducted a systematic review to identify articles describing the process of disclosing a diagnosis of ASD from the perspective of children, parents, or both. The current review identified five articles reporting qualitative data on the disclosure process. Across studies, most parents were found to have disclosed ASD diagnoses to their children by adolescence, with children and parents exhibiting a variety of reactions. Concerns frequently identified by children and parents included time taken to process the emotional impact of diagnoses, delay between parents receiving diagnoses from clinicians and delivery of those diagnoses to children, concern that the ASD label would result in stigmatization, and the sense that an individual’s past behaviors or symptoms were well-explained by the new diagnosis. Identification of these potential problems may serve as an initial step to inform the development of best-practice guidelines for parental disclosure of ASD diagnoses to youth and further research on this understudied part of the diagnostic process.
Identifier: FSU_libsubv1_scholarship_submission_1518537263_72b43447 (IID), 10.1080/23794925.2018.1435319 (DOI)
Publication Note: This is the accepted manuscript of an article published in the journal of Evidence-Based Practice in Child and Adolescent Mental Health at https://doi.org/10.1080/23794925.2018.1435319.
Preferred Citation: Isaac C Smith, Jeffrey A Edelstein, Bradley E Cox & Susan W White (2018). Parental disclosure of ASD diagnosis to the child: A systematic review, Evidence-Based Practice in Child and Adolescent Mental Health, DOI: 10.1080/23794925.2018.1435319
Persistent Link to This Record: http://purl.flvc.org/fsu/fd/FSU_libsubv1_scholarship_submission_1518537263_72b43447
Owner Institution: FSU
Is Part Of: Evidence-Based Practice in Child and Adolescent Mental Health.

Choose the citation style.
Smith, I. C., Edelstein, J. A., Cox, B. E., & White, S. W. (2018). Parental disclosure of ASD diagnosis to the child: A systematic review. Evidence-Based Practice In Child And Adolescent Mental Health. Retrieved from http://purl.flvc.org/fsu/fd/FSU_libsubv1_scholarship_submission_1518537263_72b43447