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Adults Living with Type 2 Diabetes

Title: Adults Living with Type 2 Diabetes: Kept Personal Health Information Items as Expressions of Need.
Name(s): Whetstone, Melinda, author
Gross, Melissa, professor directing dissertation
Goldsmith, Ron, university representative
Burnett, Gary, committee member
Lustria, Mia Liza, committee member
School of Library and Information Studies, degree granting department
Florida State University, degree granting institution
Type of Resource: text
Genre: Text
Issuance: monographic
Date Issued: 2013
Publisher: Florida State University
Place of Publication: Tallahassee, Florida
Physical Form: computer
online resource
Extent: 1 online resource
Language(s): English
Abstract/Description: This study investigated personal information behavior and information needs that 21 adults managing life with Type 2 diabetes identify explicitly and implicitly during discussions of item acquisition and use of health information items that are kept in their homes. Research drew upon a naturalistic lens, in that semi-structured interviews were conducted in participants' homes. The rich narratives provide insights into situational relevance associated with kept health information items, the uses thereof, and stated information needs. The descriptions of situational relevance were analyzed for themes of information keeping and use in context, as well as expressions of information need that were implicit to participants' situations. The study and its pre-test were conducted in a mid-sized city in the Southeast from April to September 2011. All pre-test (n = 3) and study participants were recruited from diabetes education classes, conducted at a diabetes center associated with a teaching hospital. The study participants were 38-79 years old (mean = 60 years, SD = 9.5) and the majority of participants were female (n = 15, 71%), white/Caucasian (n = 17, 81%), employed (n = 13, 62%), married (n = 11, 52%), insured (n = 18, 86%), and new to diabetes (diagnosis < 3 months n = 15, 71%). Participants kept 706 items in the home, but only a subset (n = 300) were used to manage life with Type 2 diabetes. The interviews focused on these kept and used items to guide the study, similar to the notion of critical incident, to address questions of personal context, information needs, and item uses. Results showed that participants primarily kept and used paper-based items, but digital items, e.g., bookmarked websites, were also used. Results also show that the categories found in literature for `Item Type' and for `Item Use' required expansion. Findings also revealed that individuals with Type 2 diabetes may keep and use health information items to manage life with diabetes within four primary contexts: activity, adjustment, challenge of living with diabetes, and emotion. Analysis of information keeping and use in context showed that kept information items, when examined within a lens of situational relevance, can provide insight into information needs that individuals with Type 2 diabetes may not readily identify.
Identifier: FSU_migr_etd-7657 (IID)
Submitted Note: A Dissertation submitted to the School of Library and Information Studies in partial fulfillment of the requirements for the degree of Doctor of Philosophy.
Degree Awarded: Summer Semester, 2013.
Date of Defense: April 25, 2013.
Keywords: health information technology, information behavior, information needs, Type 2 diabetes
Bibliography Note: Includes bibliographical references.
Advisory Committee: Melissa Gross, Professor Directing Dissertation; Ron Goldsmith, University Representative; Gary Burnett, Committee Member; Mia Liza Lustria, Committee Member.
Subject(s): Library science
Information science
Persistent Link to This Record:
Owner Institution: FSU

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Whetstone, M. (2013). Adults Living with Type 2 Diabetes: Kept Personal Health Information Items as Expressions of Need. Retrieved from